Monday, 4/9/12...Wow, what a day it's been.  You know how  Doctors tell you to control your stress?  Might as well be telling us to control the weather, right!  I told myself, I would be honest on this blog, because when people start reading it, and responding, I want them to be able to come here and be honest as well.  So, here goes.  I have a daughter who has bi polar, and I spent a few hours today with her, and my lovely grandson.  I helped her apply for Disability.  Things went well, until what she needed from me was over, then all hell broke loose.  Hmmm, funny how that seems to keep happening  Anyway, I came home in tears, telling myself I was not going to put myself through this again.  Actually, this is just an extension of Easter...Father issues...we all have them, right?  But, this, right now, is about stress.

 Humira reduces my immune system to zero, well almost, and stress, well, it will take it the rest of the way to zero, quickly!  The Doctor informed us that if I get sick...1.  I can't take my shots, and the pain will increase, and NO ONE wants that....2.  If I get too sick, I will be admitted into the hospital, and Lord, I don't want any more trips into the hospital!  Have you read the side effects of Humira?  Bad, bad side effects!!  So, keeping your stress level down is very important, and so far, I haven't done a very good job of it..yet.

My pain level has gone down some since my third injection.  I do see a pattern during the week OF the injection, the pain is more tolerable, but the week AFTER the injection, the pain increases and I have to take more vicodin and other pain relief medications.  I don't see my Doctor until the end of May, where we are going to  talk about increasing my injections to weekly.  Night time is horrible.  I think it's because I am in one position for so long, and when I move, it feels like my hips are breaking.  There is other pain as well.  Hands, wrists, fingers, ankles, shoulders, ...oh hell, it's all over! ha ha!!  Soon as you say, "all over'', you become the Fibro Queen though.  

Maybe tomorrow, I'll have a "positive'' day, and I can catch you up on everything else of my medical history that might have something to do with AS and introduce you to my family.  I haven't figured out how to put pictures on here yet, but I'll work on that as well.  Since we joined the "new age" and got a phone with a camera, I'll have a lot of pictures to share.

There is so much to talk about....so the beginning sounds like the best place to start....